Tuesday, October 27, 2009
Our Story
Yesterday was the day that my world was turned upside down. Three weeks ago we found out during the ultrasound that the baby's heart rate was too high, over 200. I went back yesterday to have a follow up ultrasound and the heart rate dropped down to 188, which was still too high. They also noticed that the nuchal fold was measuring to large, and it is highly likely that it is a chromosomal abnormality or a heart defect. I talked to both my OB and a specialist and after they looked at everything, both of them said that I'm going to lose the baby. There is a 10-15% percent chance that I could carry the baby to term, but most likely it would be stillborn or pass away shortly afterward. Right now I have the option to do some testing, which I think Jon and I have decided that we are going to do, it would be helpful to at least have a diagnosis, though it won't make this any easier. Either way I will need to choose whether or not to end the pregnancy now or wait to miscarry, which could happen at any time during my pregnancy. None of them said that there is a possibility to come out of this situation with a living baby. It is so difficult to see your child kicking their legs and sucking their thumb, and then moments later have someone tell that child is not going to live. This is going to be the hardest choice I have ever made, right now I plan to wait and pray.
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Our Journey
Eli's Story
After several ultrasounds and two CVS tests, it was confirmed that our son, Elijah, had Trisomy 13. He had several defects such as extra fingers, cleft palate, no lenses (eyes), enlarged kidneys, two vessel cord, the right side of the heart appeared to be larger than the left, and a few more things. Although Eli had many complications, he was both perfect and beautiful to us. He has opened up our hearts to what love truly means. We were not sure if he would make it to term or through labor. Around 35 weeks it became obvious that Elijah's growth was slowing down. I was induced at 37 weeks, and Elijah Alexander was born at 2:30 am, April 25, 2010, weighing 4 lbs. 15 oz. He was absolutely beautiful. He lived for 12 beautiful hours, and at passed away peacefully at 2:30 pm, April 25, 210.
About Me
- LC
- I have such an amazing family, I am so blessed. My husband Jon and I have a beautiful daughter named Dylan who is constantly making us smile. We also have a son, Elijah, who has changed our world and touched our hearts. Even though he is an angel now, we will always embrace and celebrate his life.

4 comments:
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I am sorry you are going through this! I can't even imgagine. T&P are with you!
I can't even imagine how difficult this must be for you & your husband. I am keeping your family & your sweet little babe in my thoughts & prayers.
Yesterday we had a NT scan and an emergency CVS done for genetic testing. Our baby showed a large cystic hygroma.
I am sorry truly sorry for your loss but please know that I've just read through your entire blog and it has given me peace of mind we're not alone in this.
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