Thursday, November 12, 2009
I want to thank everyone who has had us in their thoughts and prayers, I know that I could not go through this without the support of my loving husband, family and friends. After receiving the news, Jon and I went to the hospital to meet with my doctor and a genetic councilor. The genetic councilor discussed Trisomy 13 with us in greater detail and gave us a general idea of what to expect. Unfortunately because the baby is a boy he has a little less of a chance for survival, girls usually tend to be a little stronger in the uterus. We were told that the best chance to be able to meet our baby alive would be to induce labor around 20 weeks, but of course the baby would pass away soon after. If we choose to take the pregnancy to term he will most likely be stillborn, but there is a little chance that he might be able to live for a few hours or days if we are lucky enough. We have not made any decisions yet, all we know is that we want to do whatever it takes to be able to meet our son. We were told that if we plan to try for more children in the future, which we want to, there is a slight risk for something like this happening again. Normally they would put me at zero risk, but because I am so young and this is happening they are a little baffled. This day has been absolutely heart wrenching, but Dylan has been my one little ray of sunshine throughout the day, and all of this makes me realize how special she really is.
Posted by LC at 4:10 PM
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After several ultrasounds and two CVS tests, it was confirmed that our son, Elijah, had Trisomy 13. He had several defects such as extra fingers, cleft palate, no lenses (eyes), enlarged kidneys, two vessel cord, the right side of the heart appeared to be larger than the left, and a few more things. Although Eli had many complications, he was both perfect and beautiful to us. He has opened up our hearts to what love truly means. We were not sure if he would make it to term or through labor. Around 35 weeks it became obvious that Elijah's growth was slowing down. I was induced at 37 weeks, and Elijah Alexander was born at 2:30 am, April 25, 2010, weighing 4 lbs. 15 oz. He was absolutely beautiful. He lived for 12 beautiful hours, and at passed away peacefully at 2:30 pm, April 25, 210.
- I have such an amazing family, I am so blessed. My husband Jon and I have a beautiful daughter named Dylan who is constantly making us smile. We also have a son, Elijah, who has changed our world and touched our hearts. Even though he is an angel now, we will always embrace and celebrate his life.