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Thursday, November 12, 2009

A little more info

I want to thank everyone who has had us in their thoughts and prayers, I know that I could not go through this without the support of my loving husband, family and friends. After receiving the news, Jon and I went to the hospital to meet with my doctor and a genetic councilor. The genetic councilor discussed Trisomy 13 with us in greater detail and gave us a general idea of what to expect. Unfortunately because the baby is a boy he has a little less of a chance for survival, girls usually tend to be a little stronger in the uterus. We were told that the best chance to be able to meet our baby alive would be to induce labor around 20 weeks, but of course the baby would pass away soon after. If we choose to take the pregnancy to term he will most likely be stillborn, but there is a little chance that he might be able to live for a few hours or days if we are lucky enough. We have not made any decisions yet, all we know is that we want to do whatever it takes to be able to meet our son. We were told that if we plan to try for more children in the future, which we want to, there is a slight risk for something like this happening again. Normally they would put me at zero risk, but because I am so young and this is happening they are a little baffled. This day has been absolutely heart wrenching, but Dylan has been my one little ray of sunshine throughout the day, and all of this makes me realize how special she really is.

5 comments:

Schreurs

Laura and Jon, My heart goes out to the two of you, I can't imagine what you are going through right now or the tough decisions you will have to make in the next few days/weeks. Please know that we are praying for you daily and hope that God can direct you to make this easier for you. I love the last post where it says that Dylan is your little ray of sunshine, don't forget that!

KimberlyAnne

Hi i'm Kimberly I saw your link on thebump. I am sorry you are going through this. I am going to add you to my prayer list. Our God is bigger and can do anything. I hope you are able to carry to term and that God has a miracle waiting for you!

MrsKittle

Hello Laura and Jon,
Please know you and your family are in my prayers daily. I have truly been touched following your story (I bump on 3-6mo) and think of you often. I pray the Lord shows you His mighty plan for your son and his time with you. I also pray Blessings and the Lords eternal grace for your family. Your little girl Dylan is beautiful and God gave her to you to be just what you said, your little ray of sunshine. I cant imagine being in your shoes, but can only encourage you to remember, our Lord doenst give us anything he wont then give us the tools to overcome.
You will be in my prayers,
Kimber

Trisomy 13 - Patau Syndrome Support

Hello,

I am available to offer you support if you'd like to talk. I have a child still living with full trisomy 13, she is now 9 yrs. I'm in Calif.

There is alot of support and resources available.
Living with Trisomy 13...
http://www.livingwithtrisomy13.org

The Skis

I am new to your blog. I saw your posting on the special needs board on the bump. I can't relate to your story - I have a different story, but I can relate to the dispair and the fact that your daughter is providing you with the comfort you need. My daughter is the same for me - I am so lucky to have her. If you read my story you'll understand why.

I'm thinking of you and your family.
Jennifer

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