Wednesday, December 23, 2009
20 Week Ultrasound
We spent about 5 hours at the hospital today, and needless to say I am exhausted, so I will try and give you the shortest version of what we found out today. I was prepared for some bad news, but the results weren't exactly what I was expecting. To our surprise, his heart looks like it is functioning normally, may have a little murmur, but nothing severe. His brain is separated into a left and right, but there is nothing connecting the two, so he will not have normal brain function. His kidney's are enlarged as well. It does appear that our son won't look exactly like a normal baby either. They were unable to see any eyes, just the eye sockets. He has a severe cleft palate, and it looked like another hole in his face as well. He has six fingers on each hand and six toes on each feet. It breaks my heart that I will not be able to look into my son's eyes, or be able to breastfeed him. Right now it looks as if we will induce whenever it becomes medically necessary. If we choose to induce before 24 weeks it will not be covered under insurance, but anytime after that it will. It is very likely that Eli will not make it to term, and when I go into labor it will be induced, this could be anytime between 24-37 weeks. It looks like no matter when he is born, and if he can make it through labor, Eli will probably only live from a few mintues to maybe a couple of hours.I met with a neonatal intensive care specialist who put together a team of doctors and caregivers to help me from making a birth plan to planning the funeral. It is going to be a tough tough road ahead of us, and even though Eli is very sick and does not look normal, he is perfect in my eyes. Thank you for all of your prayers and support, we need them now more than ever.
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Eli's Story
After several ultrasounds and two CVS tests, it was confirmed that our son, Elijah, had Trisomy 13. He had several defects such as extra fingers, cleft palate, no lenses (eyes), enlarged kidneys, two vessel cord, the right side of the heart appeared to be larger than the left, and a few more things. Although Eli had many complications, he was both perfect and beautiful to us. He has opened up our hearts to what love truly means. We were not sure if he would make it to term or through labor. Around 35 weeks it became obvious that Elijah's growth was slowing down. I was induced at 37 weeks, and Elijah Alexander was born at 2:30 am, April 25, 2010, weighing 4 lbs. 15 oz. He was absolutely beautiful. He lived for 12 beautiful hours, and at passed away peacefully at 2:30 pm, April 25, 210.
About Me
- LC
- I have such an amazing family, I am so blessed. My husband Jon and I have a beautiful daughter named Dylan who is constantly making us smile. We also have a son, Elijah, who has changed our world and touched our hearts. Even though he is an angel now, we will always embrace and celebrate his life.

10 comments:
I will be praying for you this Christmas. I am so inspired by your story to love on my 4 month old every chance I get. Enjoy the time with your family this holiday, and I hope Eli gives you some more good kicks on Christmas.
I've been thinking of you and your family. I lost our baby to Tri13 this summer, but I was still quite early on, and the baby passed before we found out.
I admire your strength, but so very very sorry it's being tested. My thoughts are with you.
-Tracie (Davezwife)
I have been keeping up with your post-I came across it on the bump one day. Every night, as my daughter and I say our prayers we always include you, Elijah and your family. You are such a brave mother. I pray God gives you the strength you need for the upcoming days. God Bless.
i just wanted to say you and your family are in my thoughts and prayers. i came across your blog from the bump and my heart aches for you and your family. when i read this post about you not being able to look into your son's eyes, it broke my heart and i sit here crying. i'm so sorry for all that you're going through! i believe that though little eli may have little time here, he (through you) will be a blessing to many! he is so blessed to have such loving and strong parents. i continue to pray for you and your family. big hugs!
Just wanted to let you know that you are all in our thoughts and prayers! I can't imagine what you are going through right now, but I do know that you are very strong parents that are so loving to your little guy, he is so blessed to have you in his life! Make God help you through this difficult time and cherish the moments you have with little Eli and most importantly with Dylan as she continues to grow! Hugs to all of you!
I just wanted to tell you what a strong women you are, T & P to you and your family more now then ever.
Came across your blog thru a google search on Trisomy 13 ... Am feeling for you and your family - The unknown is painful & frightening. We lost our baby girl (1st child) this past April to Trisomy 13, she lived 27 hours. I'm sorry.
You are a very strong woman. I pray that your family will be able to get through this very trying time. My T&P are with you
Ugh Lauren, I just caught up with your posts now & my Husband called and I was crying & told him your story. So very sorry for the visual defects that you were unaware of. You are so strong & amazing. It gives me peace to know that you have a beautiful, healthy girl who is going to help you get through this.
Love, Kristi (Kmf143)
My thoughts and prayers go out to you! I came across your blog from my sister Leah (she posted above). I can't even begin to imagine the emotions you are experiencing, but I know that even I am sitting here crying as I read your story...knowing full well that God has a beautiful plan for you and your little family. I am amazed at your strength and your bravery in sharing this story with others. You have and will touch many lives with your story...and I hope you find peace through the rest of your journey.
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