Wednesday, January 6, 2010
Feeling Guilty
I feel so bad that I haven't been updating this blog. I haven't even taken a belly picture for a few weeks. I think this has to do with the news that we heard at my last ultrasound. It is so hard for me to think about what is going on with Elijah. I used to picture him in my mind as I fell asleep at night, and now I don't even want to have the image of how he really looks in my mind. Does this mean I love him any less? I don't think so.I still picture how he would look without all of his defects, and this is the image I want to keep in my mind. I have an appointment tomorrow to start going over my birth plan for when he arrives. We still have no idea when we will meet Eli and whether or not he will be alive when we do, and this is absolutely killing me. I hope to update more often, and will try and take another belly picture soon, I think in the future I will want all of these keepsakes.
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Eli's Story
After several ultrasounds and two CVS tests, it was confirmed that our son, Elijah, had Trisomy 13. He had several defects such as extra fingers, cleft palate, no lenses (eyes), enlarged kidneys, two vessel cord, the right side of the heart appeared to be larger than the left, and a few more things. Although Eli had many complications, he was both perfect and beautiful to us. He has opened up our hearts to what love truly means. We were not sure if he would make it to term or through labor. Around 35 weeks it became obvious that Elijah's growth was slowing down. I was induced at 37 weeks, and Elijah Alexander was born at 2:30 am, April 25, 2010, weighing 4 lbs. 15 oz. He was absolutely beautiful. He lived for 12 beautiful hours, and at passed away peacefully at 2:30 pm, April 25, 210.
About Me
- LC
- I have such an amazing family, I am so blessed. My husband Jon and I have a beautiful daughter named Dylan who is constantly making us smile. We also have a son, Elijah, who has changed our world and touched our hearts. Even though he is an angel now, we will always embrace and celebrate his life.

3 comments:
Keeping you in thought and prayer...
We have a wonderful support community off our message boards as well as many carrying to term resources off the LWT13 website.
Be sure to visit the "Don't Miss" websites off this page.'
http://livingwithtrisomy13.org/prenatal-diagnosis-of-trisomy-13.htm
ThereseAnn, mom to Natalia
http://www.livingwithtrisomy13.org
Just noticed off your husbands blog that you are in So. Dakota. The SOFT USA, the National Trisomy Support Organization will be having their yearly convention in your state.
Here is the information.
http://trisomy.org/conference.php
and a gallery of photos from past conventions.
http://www.trisomy.info/photos/
If I can be of any support, please do reach out...
Hi Laura,
Your little Eli has been in my prayers. I don't know you except from the internet, but your story has touched me. I am so amazed at how strong you and your husband are. You are truly an inspiration.
There's a song on the radio that I hear daily. And every day, I swear, I hear it and think of you. I wanted you to hear it and know that God is with you. Miracles do happen. You just have to have faith.
http://www.youtube.com/watch?v=DTr8mB--sZw
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