Friday, January 22, 2010
My appointment today was a complete disaster. First, when we arrived we were told to meet with the financial adviser to go over the costs of delivery. When we sat down in her office she told us congratulations and asked when I was due, obviously she had no idea what was going on and it was a little upsetting. The tech that did my ultrasound was one we had never met before, so she was seeing everything for the first time. I kept asking what she was seeing and if there was anything new that was appearing, and she never really told me what was going on. Then halfway through my appointment the power goes out, and to top it off when the backup generators turned on the fire alarms went off. We were herded down some stairs and into a hallway where we sat for about a half hour not knowing what was going on. People started leaving and we were told to call in on Monday and reschedule, of course we were not going to wait until Monday to find out what was happening. We finally found a nurse who knew us and she found the peri who did the echo at 20 weeks.
The tech. had left for the day and the computers were down so they were unable to know what was seen during the ultrasound. After talking to the peri for quite a while we were basically told that I have no choice but to carry Eli until he passes away or until I hit full-term. He didn't think that Eli was sick enough for me to be induced, and that would probably not change. This was really upsetting for me to hear and believe especially because I have hardly felt any movement, my blood pressure was higher, and if Eli were any worse he would not be alive. A lot of this has to do with politics, the hospital does not want to take the legal risk of inducing me because they don't want it to be considered a "termination," even though it would have the same outcome if we did it at 37 weeks.
We will be meeting again next week and probably do another ultrasound, but from the looks of it, I will have to either wait until Eli passes away or am induced in May to meet him. I was extremely upset after hearing all of this because it was not what I was told two weeks ago. Had I gone in yesterday I could have been legally induced, but since I hit 24 weeks today, that is no longer a possibility. I am devastated and I have no idea how I am going to get through the next 3 or 4 months. Thanks to everyone who was thinking of us today, I appreciate the support, and will definitely be needing it for the next few months to come.
Posted by LC at 4:38 PM
After several ultrasounds and two CVS tests, it was confirmed that our son, Elijah, had Trisomy 13. He had several defects such as extra fingers, cleft palate, no lenses (eyes), enlarged kidneys, two vessel cord, the right side of the heart appeared to be larger than the left, and a few more things. Although Eli had many complications, he was both perfect and beautiful to us. He has opened up our hearts to what love truly means. We were not sure if he would make it to term or through labor. Around 35 weeks it became obvious that Elijah's growth was slowing down. I was induced at 37 weeks, and Elijah Alexander was born at 2:30 am, April 25, 2010, weighing 4 lbs. 15 oz. He was absolutely beautiful. He lived for 12 beautiful hours, and at passed away peacefully at 2:30 pm, April 25, 210.
- I have such an amazing family, I am so blessed. My husband Jon and I have a beautiful daughter named Dylan who is constantly making us smile. We also have a son, Elijah, who has changed our world and touched our hearts. Even though he is an angel now, we will always embrace and celebrate his life.