Monday, January 25, 2010
I'm going to have an ultrasound every other week and on the weeks that I don't have one they will do an NST. I feel much better about this, and everyone that is on my case and the palliative care team are meeting with me tomorrow after my ultrasound to make sure that we are all on the same page and that my wants and desires are being heard. I'm so glad that they will be checking him weekly rather than monthly so any change can be seen right away. His heart rate was around 130 today (was 150 on Friday), but it is still sounding good, and my blood pressure has gone down. When they did the ultrasound on Friday he was measuring about 22 weeks and was a little over 1lb, but most of his anatomy is measuring in less than the 3rd percentile and that percent has been steadily declining as time goes on. They will keep monitoring his growth, but it probably won't increase a lot because he only has one umbilical artery. I am so glad that everyone on my case is communicating better and we will all be meeting. If everything goes well and Eli keeps staying strong we will meet him in about 3 months, I pray this is the case!
Posted by LC at 3:31 PM
After several ultrasounds and two CVS tests, it was confirmed that our son, Elijah, had Trisomy 13. He had several defects such as extra fingers, cleft palate, no lenses (eyes), enlarged kidneys, two vessel cord, the right side of the heart appeared to be larger than the left, and a few more things. Although Eli had many complications, he was both perfect and beautiful to us. He has opened up our hearts to what love truly means. We were not sure if he would make it to term or through labor. Around 35 weeks it became obvious that Elijah's growth was slowing down. I was induced at 37 weeks, and Elijah Alexander was born at 2:30 am, April 25, 2010, weighing 4 lbs. 15 oz. He was absolutely beautiful. He lived for 12 beautiful hours, and at passed away peacefully at 2:30 pm, April 25, 210.
- I have such an amazing family, I am so blessed. My husband Jon and I have a beautiful daughter named Dylan who is constantly making us smile. We also have a son, Elijah, who has changed our world and touched our hearts. Even though he is an angel now, we will always embrace and celebrate his life.