Monday, January 25, 2010
We Have A Plan!
I'm going to have an ultrasound every other week and on the weeks that I don't have one they will do an NST. I feel much better about this, and everyone that is on my case and the palliative care team are meeting with me tomorrow after my ultrasound to make sure that we are all on the same page and that my wants and desires are being heard. I'm so glad that they will be checking him weekly rather than monthly so any change can be seen right away. His heart rate was around 130 today (was 150 on Friday), but it is still sounding good, and my blood pressure has gone down. When they did the ultrasound on Friday he was measuring about 22 weeks and was a little over 1lb, but most of his anatomy is measuring in less than the 3rd percentile and that percent has been steadily declining as time goes on. They will keep monitoring his growth, but it probably won't increase a lot because he only has one umbilical artery. I am so glad that everyone on my case is communicating better and we will all be meeting. If everything goes well and Eli keeps staying strong we will meet him in about 3 months, I pray this is the case!
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Eli's Story
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About Me
- LC
- I have such an amazing family, I am so blessed. My husband Jon and I have a beautiful daughter named Dylan who is constantly making us smile. We also have a son, Elijah, who has changed our world and touched our hearts. Even though he is an angel now, we will always embrace and celebrate his life.
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5 comments:
i think about you and your family and little eli so often. just wanted to let you know you're still in my prayers.
I too wanted to let you know I think of you and your family every day. You are all in my thoughts, and hopefully little Eli will meet you in three months. You so deserve even just a few minutes with him, since the life-time gaurantee will unfortunately not be coming to fruition like it so desperately should.
Good, positive, healthy-healing thoughts are being sent your way from here in SoCal! (:
This blog post makes me smile - I'm so glad that you are getting some good news! Thinking of you!
kellyperk85 TheBump
I was reading this blog and came across this post the other day. It made me think of you and Eli. I am sorry that things did not work out the way you wanted with the induction, but please know my family and I are praying for your family every day. My husband has a brother with Downs and his youngest sisters were twins, one born with Trisomy 18. Although she only lived for a few days, she is loved as much as any other member of the family. God bless you and your family.
I think you are absolutely amazing! I wish your circumstances could be different. I'll keep you, your family, and especially Elijah in my thoughts and prayers!
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